St Davids – Autism Day Treatment Program
by admin on Mar.08, 2010, under 2010, ASD Events
If you are interested in a half day therapy program for your PreK child (with ASD), you may want to go to their open house. I am very impressed with their warmth and facilities, but have never sent my child there for anything. Have you? Would love to hear about your experiences. Open House is on March 15th.
How to educate your child’s educator
by admin on Mar.06, 2010, under 2010
Last night’s meeting w/ the support group meeting was more of an interesting round table discussion, by the time I arrived.
Some of the ladies that go there, have come to my website and so I know that I may be directly speaking to them (you). I always, ALWAYS feel like an ass hat for giving my 2 cents as a public school teacher, but yet, I consistently find a way of doing it. So excuse me for always playing devil’s advocate and giving a different perspective. I am more than aware that this might put a strain on forming friendships, but it has been painful to hear the distrust and anxiety that has come out of other people’s public school experiences. While I know that I am not the person that is involved; it seems these educators have done a piss poor job of gaining any trust or credibility. I guess this doesn’t just sadden me as teacher, but also as a mom. It makes me anxious for the future with my own child. Will I be able to trust public schools? Will they fail my child too?
It also begs the question, how do we get schools to see the ramifications of a certain incident(s)? How do we teach the teachers about special education? No wonder by the time these families have teenagers, they are either overly involved or appear to not be involved at all. It really was black and white (btw I was a public school art teacher for the last 4 years). On one hand, I experienced a parent, that basically only works with the special needs case manager. I would hear from the SPED teacher only, as if they were the voice of the child and family. Sort of weird now that I think about it, but very typical. The other option, was when I did hear from the parent, it was bad. It was hard, harsh, attacking, and difficult to manage. The times I heard from these parents, made me feel like I was going to get fired. Their tactics were aggressive – ie. always copying (via email) principals in on a discussion about a fairly nothing topic. That was a huge “What the hell?” or how about the time a mom never met me and after 1 week of her child being in my class, she demanded the child not only be removed (declined) and to never take my classes again (also declined). I would have never known about that incident, if the counselor would have not told me.
And from all of this, I need to shed some advice. Your first response to a problem is to NOT call principals or counselors. Pick up the phone or send an email directly to the teacher.You don’t drag the school into an issue about grades, tardies, or late assignments until you at least talk to the teacher and see what he/she has to say.
When you do speak to the teacher, step out of the situation emotionally, and don’t take it personally, and do NOT judge the teacher until you have at least met this person over the phone or in person before you take your child’s side. So many times, I felt like I had to correct every single detail a child had said to their parent. Most of the time, the story was just skewed because they are a kid, but most of the time it as flat out lies to make them look good and me to look really unprofessional and stupid. It wasn’t like it was hard to explain what really had happened, but it is hard when the parent is worked up and convinced their child is right and then gets a whole other view pt. We all want to be right, but teenagers really don’t want to look bad in the eyes of their parent. And really, they don’t want to get in trouble. For example, Mrs. C never told me this was due, she didn’t give us enough time, etc. These are typically just fabrications because the child talks during the entire class, day after day. They probably can’t even see how much time they are wasting socializing. It’s easy to blame me. (This is making me want to choose a new profession!)
I am not perfect. This isn’t about me, but do realize if you are interested in killing someone’s career…involve the principal. Principals are not interested in this type of thing. They will get involved, but a good principal believes the teacher is the manager of their classroom and can handle it. You don’t get admin involved unless the teacher is NOT working with you.
Ok, back to why I really started to write today. I know I have a 2 year old. I know that we have not yet sent him to school, but going back to the topic “how do I educate the educator?”… first of all, do not assume you have to. Most teachers have graduate degrees, which include their subject matter, education classes, and special needs education classes. 2) I would recommend – either set up a meeting with teacher(s), or create a printed document that you can update and pass out if you do not have the time/energy to do meetings. 3) I would suggest a written document over a meeting to “normalize” this education thing for both you and child.
I don’t think you have to spend hours on this document and I don’t think the way you do it (medium) matters. Create a powerpoint, book, brochure, or just type something up in Word so you could easily email or print it off.Personally, I am going to go with a medium that I can manipulate for years because something tells me that I will want to meet his teachers each year and by the time he gets to HS, you will want to do this with each teacher, each quarter…and let’s face it…that’s a lot of people. Which is why I think I didn’t hear from some parents by the time the child makes it to HS.
My opinion is until a child graduates, your advocacy may be extremely necessary and appreciated by your child and their teachers. I struggled like crazy to help some kids pass my stupid elective art class because I had no idea how their disability was influencing their classroom experience. Leaning on your child’s case manager is not always a great idea. I have worked with excellent SPED teachers and others that were overwhelmed, uninterested or about retire…or something, that were NOT going to be your child’s best resource to communication and advocacy. A simple email, BEFORE the quarter starts is the best way to start a positive relationship with your child’s teacher.
On the other hand, if you are emailing a kids’ teacher 4x a day, it’s time to call a meeting and meet face-to-face. As a teacher, it is aggravating to spend every free moment emailing one parent of 150 students that often. There are times where this is necessary, but a daily note or this level of involvement is only helping one person – the mom/dad.
It came up last night and it has come up before, giving a book(s) to a teacher about the disability should seriously be thought through before you hand that over to this person. I wouldn’t bother if I were you. Teachers are busy and your child could be 1 in 150 students that teacher works with each day (getting 150 more every 9 weeks). Unless the disability is very unique, I would not bother with much more than a simple handout at most. Like I said, teachers take special needs classes, and have just as much access to information about a disorder as any parent. This is where it gets important…it’s not about the disorder. The important piece is YOUR CHILD. Generic autism information is every where, but there is nothing written up about your kid. This is why you have to step up and create it.
I found a couple of online reference to write up a sample letter to your child’s future teacher. It might be a great jumping off pt so you can tailor it to your own. Do not hesitate to be involved, but at the same time, respect the channels of appropriate communication with the schools. Assume they care a great deal rather than not. That is a major point of contention for me as a teacher. Assume they know how to work w/ your child and that they need some more information, so you can work as a team rather against the teacher/school system.
As for creating a teacher packet, like anything, well intended, does not always result in what you want…so precede with caution when you think handing a stack of books (ok, one book) to your child’s teacher. I think the way you educate your child’s educator about their disorder looks the same as the way you would educate your in-law’s, neighbors, etc. My father-in-law wouldn’t want a packet on how to be a grandparent to a child with autism and I have to assume some teachers would not want that either. I think it’s best to discuss it first and see if there is a genuine interest. Why buy something that is going to sit on their shelf for years gathering dust?
Look over those links. I think you will find an excellent place to generate ideas for how you want to start the school year or quarter with your child’s teachers.
Upcoming Events
by admin on Mar.03, 2010, under 2010, ASD Events
(Info borrowed from my friends at NW Spark)
Toddler Talk Class
Saturday, March 13th 2010
9:00 – 11:30 am
RiteCare Clinic
11090 183rd Circle NW, Ste B
Elk River, MN 55330
For parents of toddlers ages 15-30 months who are concerned about their child’s language development, Toddler Talk is a parent class designed to give parents of young talkers the tools they need to improve their child’s language development. Families will learn:
- Normal language development stages
-How to increase their child’s communication through play
-Easy, fun activities to encourage language development
-“Red Flags” of more serious communication issues
Cost is Free (thanks to our generous sponsors the Scottish Rite Masons and private donors). Space is Limited, Call now to register! 763-633-5437 Visit our website for more information.
Becker Asperger / Autism Spectrum Parent Group
March 18, 2010
6:30-8:00 PM
Becker Intermediate School
We exist to offer support, education, and resources to parents. We gather on a monthyl basis, are parent facilitated, and offer Childcare and pizza at no cost. R.S.V.P. with Pat Brown, School Social Worker at 763.261.4504 or email pbrown@becker.k12.mn.us
Sensory Processing Presentation
March 22nd, 2010
12:00 – 2:00 pm
Anoka-Hennepin Staff Development Center
2727 N. Ferry Street
Anoka, MN 55303
Call 763-323-KIDS or email Cheryl.Olson@co.anoka.mn.us to register. Registration is limited to 100 people and will fill up fast. Coffee and cookies will be provided; you are invited to bring your own bag lunch.
Autism Transition Planning and Implementing: A Life Skill Perspective
Monday, March 22nd, 2010
7:00-9:00 p.m. (registration 6:30 p.m.)
Resource Training and Solutions
Cold Spring Center, Suite 550
4150 2nd St. South, St. Cloud, MN 56301
Life and school planning for children with autism begins long before the state-mandated age 14. At this workshop, parents of children with autism will learn:
- practical information to help their child reach their full potential
- how to make the necessary changes to teach in “real time”
- techniques to teach specific skills such as personal safety, self advocacy, grooming and self image, decision-making
- responsibilities for being an active member of a household
This event is co-sponsored with ARC Midstate. Fee is $15/person or $25 for two. Refreshments served. To register or for more information: Go online at www.resourcetraining.com or call the Resource Training & Solutions at 255-3236 or 888-447-7032.
Family/Sibling Relationships with Special Needs
Thursday, March 25, 2010
Handke Family Center
Elk River, MN
Mark this event as a placeholder on your calendar, as we have arranged for a special presentation from Joan Blaska, the author of Using Children’s Literature to Learn About Disabilities and Illness. More details to be released soon.
April S.P.A.R.K. ASD Parent Network Meeting
Wednesday, April 7, 2009
7pm – 9pm
Handke Family Center Rm. 112
This is a parent facilitated, informal gathering for discussion of both challanges and joys faced by parents of children on the Autism Spectrum. A medical diagnosis is not required. Preschool and Elementary school aged topics will be covered. Occasionally speakers are brought in to feature a special interest area.
Understanding Guardianship for People with Developmental Disabilities
Tuesday, April 22, 2009
TWO SESSONS: 1:30PM- 4:30PM OR 5:30PM- 8:30PM
SHERBURNE COUNTY GOVERNMENT CENTER
13880 HIGHWAY 10
ELK RIVER, MN 55330
Also included: PROVIDING FOR THEIR FINANCIAL FUTURES THROUGH WILLS AND SPECIAL NEEDS TRUSTS. Pizza will be provided at 5PM for those who register. PLEASE RSVP FOR THIS TRAINING BY CONTACTING MARY BETH BRUFLODT AT (320) 493-1231. Please leave name, phone number, and session attending. You may also email mbruflodt@dungarvin.com
If you know of other one time events that you would like to see listed here, please contact our Web Admin, Shannon Rients at shayemail2@yahoo.com
Maple Grove Event
by admin on Mar.03, 2010, under 2010, ASD Events
Autism Parent Support Group
March 9, 2010
**Please note we will be teaming with OASIS, so will be meeting at Weaver Lake Elementary
** We will also have child care available this month, so please email me by Friday if you could benefit from this opportunity.
Location this Month
Weaver Lake Elementary
15900 Weaver Lake Road
Maple Grove, MN 55369
Time
Tuesday 7-9 p.m.
Guiding Toward Growth
This workshop presents the principles that guide parents, and caregivers toward creating successful programming for children and young adults with autism spectrum disabilities (could also be useful for children with ADHD). Participants will learn: The Band of Regulation – the state of focus and calm needed for academic and social learning; The Ten Hurdles – the internal and external conditions that get in the way of maintaining a state in which learning can occur; Methods to assess the impact of each Hurdle; Innovative interventions that are being used in schools and in community based groups. John Merges is a Licensed Independent Clinical Social Worker in private practice assisting individual with ASD and their families. He also consults and does training in many area schools.
Save the dates for future meetings: April 12th- & May 11th
Questions: Shannon Ross (763-315-7664) rosss@district279.org
Marriage
by admin on Mar.02, 2010, under 2010
Going back to an earlier entry about dealing with the diagnosis (as a parent), I believe therapy for you as an individual or couple might be a necessary component if it feels like it’s too much to handle. If you are looking for someone locally, check out Project Aspire. Bad news, she doesn’t appear to take insurance, but I think it’s worth looking at because she offers a variety of services.
And on that note, I highly, highly recommend “Married with Special-Needs Children – A couples guide to keeping connected”. I don’t think I’ll ever sell or lend out my copy, as I think this is a book I will re-visit over and over. The authors advice address issues that affect all marriages, but I really appreciated the direct information about the special needs children. They do not ignore the dynamic of adding children to your life, let alone the intensity when you have have children with special needs. It’s a great use of $14 if you aren’t getting counseling and need support.
Transition to 3 year old services
by admin on Mar.01, 2010, under 2010
This month my son is being evaluated for 3 year old services. I am not concerned about his eligibility since I will most likely not be sending him to a public preschool, but if insurance or whatever comes up, I wanted it in our back pocket.
In my search to find medical transportation, I ran across these links. Hope they might help.
A preschool check-list (more aimed at special needs children)
You don’t have to be wrong for me to be right
If you know or have any personal experience with MAC or St Davids ADT…I would LOVE to talk to you. Please leave me a comment as we are in heavy decision making mode and do not want to move forward with any new therapies without some feedback.
We are also considering sending our son to OT, speech, PT privately again. Just trying to find availability and a good location to make this all work together smoothly. It’s a non-stop search…
From Wright County Social Worker…
by admin on Mar.01, 2010, under 2010, ASD Events
Please join is in our efforts regarding Autism Preparedness, Awareness,
Intervention, Readiness, and Change!
Help us determine what is working well and what we need to work on in
the Wright County Community.
Our goal is to support our Autistic/Autism Spectrum Disorder (ASD)
Community members, their families, friends, and the professionals who
work with them.
How can you help?
By simply following the link on this e-mail and completing our survey.
It should take about 10 minutes.
Responses will be collected until March 15, 2010.
Survey results will be shared at our upcoming resource fair.
This resource fair will be held at the Buffalo Community Middle School
on Saturday April 10, 2010 from 9 a.m. – 1 p.m.
More info. to come on the fair soon, but mark you calendar today!
The fair will include many resources including a key note speaker- Jill
Kuzma, http://jillkuzma.wordpress.com , booths, and the AUSMN bookstore.
Please plan on joining us.
Feel free to pass this survey on to others as appropriate.
We want to hear from the Wright County community and those who serve
this area so that programs and services can continue to improve and
support the ever growing ASD members of our community.
Link to survey: http://www.surveymonkey.com/s/L5QQTCD
Go to sleep little one
by admin on Feb.27, 2010, under 2010
Does anyone know how to teach your non-verbal toddler how to tell you they don’t want to be in their crib anymore (other than crying and screaming)?
Some days laying him down for night time or a nap goes so well that I don’t fully appreciate the beauty of just laying him down and walking away. Other days, most days, we play a game of me (or husband) going in every so often and laying him back down and saying good-night. This dance can just happen once or for 3-4 hours depending on the circumstances of the day. We know crying it out doesn’t result in sleep. It results in a very stressed out child and mom. So we watch the time, making sure we are not popping in too often. This is the only way we can get him to sleep most of the time.
In fact, right now, I think he might be saying “up”, but I am not really sure since I just went in there (again) to say good-night, take a nap. —and by the time I re-read this entry he is full blown crying—
The dance continues.
So much of what clouds my head is -when does ASD start and end? When are his behaviors just of a 2-year old? I don’t know because I am a first-time mom. And, of course, talk to anyone without a special needs child and they are quick to say “all children are like that”. …. Thanks, helpful.
And on a more serious note, all of this elongated baby-like ness that he is most of the time, really does not make me wanting to have more children. Hubby hesitantly brought up this topic last night knowing what a sensitive topic it is. Just another example of a topic we can’t agree on. Right now we are choosing to shelf it and that might be for a few years, but he is not doing a good job of shelving it. He craves his concept of the perfect family so badly that he doesn’t always consider the quiet pressure he puts back on me. Slightly leaning on me to say “yes, let’s have another”, but instead he is doing the opposite. Each time he hints or flat out admits that he wants more kids, I silently build a strong argument for the million and one reasons I never want to be pregnant, go in a labor, or potentially repeat these past 2+ years. I feel strong enough for my 2 boys right now, I don’t know if I want to be strong enough for anymore humans.
The truth is, even if a geneticist could tell me it’s a very good chance that we will not have another special needs child; I really hated pregnancy and labor was well…labor. If I was forced to make a decision at this time, I would either say adoption or no more. I don’t know if I will change my mind on this. I don’t know if time will ease my worried mind.
Don’t get me wrong (and I am sure I really don’t need to write this, but I will anyway)…I love these 2 people with all of my heart. They are my family. They have become parts of me. But, a dream to have 2 children has been severely altered by the real experience of actually having a child. For me, it’s one day at time…month, year. I can no longer see what the future looks like because my son has taught me that life is going to well…just that, life. I can’t see anymore children today, but maybe in a year, maybe 2 or 3, I will be a different mom again and I will embrace the idea of growing this family of ours. But, today, today I am happy how we are. I can’t see myself pregnant, in labor, and raising kid 2. I am waiting for time to give me answers. Whatever those answers might be.
The day we got a diagnosis
by admin on Feb.27, 2010, under Pre-2010
I suppose this entry should be shared in April when it’s been a year since we found out about our son’s dx, but I want to start adding old entries to bridge the gap between my old journal and my new one. Also, honestly, it’s hard to always have something to write each and every day. So I guess you’ll know my slow days if you see an old entry!
This entry is from April 14, 2009. The day before his dx. (I was working as a public school teacher at this time)
The good news: About a week ago or so, G figured out how to get to standing without the help of object or person!! Yesterday he climbed 3 stairs by himself! Seriously, the most beautiful moment. I had trouble not crying. Just as cool as seeing him really walk for the first time.
This means I also took today and tomorrow off. I am not going to pretend I miss my kids at school. They are not my cup of tea I guess only because my closest friends are down the road and I feel somehow punished for having to work somewhere else. I feel more punished knowing that the likehood of it ever being the same is over. I am still dealing with this. But, work is fine. It’s so nice to not hear from parents bullying me into grades and making me explain my rationales. In fact, I haven’t heard from a single parent and something tells me I won’t, but I might need to start calling home to get some kids to act right…
2 events
by admin on Feb.24, 2010, under 2010, ASD Events
Dan Stewart to Present Manifestation Determination Workshop on March 16
Dan Stewart, supervising attorney at the Minnesota Disability Law
Center, will present Manifestation Determination: What Parents Need to
Know, a free PACER workshop for parents of children with disabilities
and for professionals. Before a child in special education can be
expelled, suspended for more than 10 days, or placed in a different
school because of behaviors, the school must hold a manifestation
determination meeting to find out if the behavior is strongly related to
the childs disability and if the behavior was caused by the schools
failure to implement the childs Individualized Education Program (IEP).
The answers to these questions determine what happens next. This
important workshop is Tuesday, March 16, 2010, from 7 to 9 p.m., at
PACER Center. Advance registration is requested. To register, call PACER
at 952-838-9000 or 952-838-0190 (TTY). In Greater Minnesota, call
800-537-2237 (toll free) or visit PACER.org .
Holland Center ABA/VB: Program for Meaningful & Lasting Change:
Presentation will discuss the importance of selecting “impact” responses from the beginning regardless of age or pervasiveness of the disability. Once you establish and generalize those “impact” responses, you can more effectively, appropriately, and systematically addre…ss additional responses. Discussion will also include importance of using appropriate tools to establish precise “operant levels” and clearly identify barriers that significantly influence treatment effectiveness. Additionally, the importance of social validity should have on the selection, prioritization & evaluation will be discussed.
For more information, please call 952-401-9359.